You’ll always know what’s going on with our organization. Just bookmark this page and check back often for the latest programs and events.
Rare Mother Meetup
This is a meetup for mothers of children with rare diseases. This is a time to find and offer support in community with other women who understand. This is a judgement, shame, and guilt free zone. Come late, turn your camera and mic on or leave or leave them off. Just come, as you are.
