You’ll always know what’s going on with our organization. Just bookmark this page and check back often for the latest programs and events.
Rare Teleplay for youth 5 - 18 Years of Age
Barth Syndrome Foundation, Sudden Arrhythmia Death Syndromes (SADS) Foundation, Children's Cardiomyopathy Foundation and National Neutropenia Network are now a part of Project Sunshine Teleplay. This is open to individuals with Barth syndrome, siblings and young immediate relatives of someone diagnosed with.
This will provide our youth (5 - 18 years old) with an opportunity to bond with others who are in a similar circumstance through fun.
Our monthly gatherings (3rd Friday of every month) will launch is December 17th at 7:30 PM EST with a holiday jingles trivia game.
Zoom Link: https://bit.ly/3oDayrf
Password: sunshine
