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Happy Heart Week
This special week will look a lot like the last few years, a virtual fund and awareness raising campaign for Barth syndrome, centered around Henry's birthday. PLUS, A BIG HAPPY HEART 10th ANNIVERSARY PARTY is happening Friday evening, May 13th, and you are invited! More information on the party coming soon, but in the meantime, mark your calendars, book a sitter, grab your dancing boots, and get ready to celebrate!
