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Barth Syndrome Conference

Monday, July 29, 2024Saturday, August 3, 2024

Join Barth Syndrome Foundation's (BSF) biennial conference, where affected families, research scientists, and clinicians unite in a singular event. This multi-track meeting, supported by BSF and our global affiliates in Canada, France, Italy, and the United Kingdom, signifies a collective commitment to amplifying our impact.

We invite you to be part of our diverse network of healthcare providers, researchers, caregivers and affected individuals to discover the latest scientific research, healthcare advancements and potential therapies surrounding Barth syndrome. IRB-approved studies will be conducted on-site to capture data from affected individuals motivated to participate in healthcare advancements.

More than a conference, this is an opportunity to forge connections within an international, diverse community-alleviating the isolation often experienced by individuals and caregivers affected by this rare disease.

Save the date and join us as we come together for a transformative experience.

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