News and Press Releases

Assessment of quality of life, anxiety, and depression in Barth syndrome: Expanding the scope of comprehensive care

Do You or a Loved One Have Barth Syndrome? Dr. John Lynn Jefferies of Cincinnati Children’s Research Foundation is doing a research study concerning the assessment of quality of life, anxiety, and depression in Barth syndrome. Please consider the attached information and contact Dr. Jefferies directly if you decide to help. Learn more...

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