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News and Press Releases

Barth Syndrome Foundation 2016 Annual Report

Barth Syndrome Foundation's 2016 Annual Report is available online. In this annual report, you’ll read about:

  • Success of a truly inspiring conference.
  • Adorable Wyatt dropped the puck at a New York Islanders game, raising awareness to a huge audience of hockey fans across the US.
  • Dr. Michael Schlame was awarded the prestigious Varner Award for his selfless support over many years and received a second R01 grant from the National Institutes of Health (NIH).
  • Devin’s mom, Nicole, talks about their journey with Barth syndrome.
  • Dr. Michael Chin received an R01 grant from the NIH, building on seed funding from BSF.
  • Four worthy grants received funding to push research further, thanks to your generosity.
  • BSF remains in a strong and healthy financial position.

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