News and Press Releases

Barth Syndrome Journal Volume 17 Issue 1

Barth Syndrome Journal Volume 17 Issue 1

The Barth Syndrome Journal Volume 17 Issue 1 is now available online.

Table of Contents

  • Helping to Find a Treatment for Everyone
  • 2016 Research Grant Cycle Awardees
  • BSF in Beantown
  • Reaching our Full Potential
  • Barth Syndrome Foundation Research Grant Program 2017 Request for Research Proposals
  • What Does it Smell Like?
  • What Are We Going To Do Now?
  • Gene Therapy 101: Basic Concepts
  • Retirements (Combine Sci/Med & Volunteer)
  • You Make a Difference (list all six FRs + appreciated stock blurb)
  • Awareness of Barth Syndrome Continues to Grow
  • BST - Update from Chair
  • News from the Bristol Barth Syndrome Service
  • Nicholas' Kitchen
  • Inspired by the 2017 Genetic Disorders UK Leadership Symposium
  • BSF of Canada President's Report
  • BSF of Canada Getting the Word Out on Research Grants

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