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BSF Welcomes Jonathan Stokes to Board of Directors

Please help us welcome Jonathan Stokes to the BSF Board of Directors. Jon is a Senior Director in Patient-Centered Outcomes Research overseeing neurology, ophthalmology, and specialty therapeutic areas at AbbVie. With 18 years of experience conducting patient-centered research and generating patient experience data, Jon has a devoted interest in understanding and integrating the patient voice in drug development.  He has extensive experience in designing, evaluating, and implementing clinical outcome assessments (COA) to evaluate treatment benefit and has made significant contributions to major product approvals and launches, as well as the development of multiple novel patient-reported outcome (PRO) instruments for use in clinical trials and real-world practice.  Through his work at Adelphi Values, Jon was a lead on the development of a patient-centered outcome tool for Barth syndrome and has continued to work extensively with our affected adult population, earning their trust and confidence as someone committed to the people and mission.  Jon holds a MBA from Northeastern University. 

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