Skip to main content

Now is the time to register for conference and sign up for your sessions!

Join us at the 2024 Barth Syndrome International Conference—a gathering to unite affected families, research scientists, and clinicians. This multi-track event, generously supported by the Barth Syndrome Foundation and our esteemed global affiliates in Canada, France, Italy, and the United Kingdom, embodies our shared commitment to advancing the field.

With nearly 250 individuals already registered and eager to participate, we invite you to be a part of this enriching conference. Our program is thoughtfully designed to focus beyond symptoms of Barth syndrome,  offering practical tools and insights for those living with or caring for a loved one with Barth syndrome. Reconnect with familiar faces and forge new connections as we come together to learn, grow, and support one another. 

Scientists and clinicians, if you are passionate about delving deeper into Barth syndrome, this is the conference to attend. Thought leaders in the field—comprising of physicians, healthcare professionals, researchers, and individuals affected by Barth syndrome—will convene in a nurturing and collaborative setting. Echoing our overarching theme, 'Benchtop to Treatments,' the Research and Development track of our upcoming conference will feature a session dedicated to clinical trial readiness. This emphasis is pivotal in the journey toward developing effective therapies for Barth syndrome

Families and individuals affected by Barth syndrome, this year we are introducing mental health programming: our first-ever Wellness and Inclusiveness track. We have designed comprehensive programming to introduce new strategies for positive coping, resilience, and stress relief. Throughout the conference, a variety of mental health activities will be offered. You can also view the agenda at a glance to get acquainted with this year's conference offerings!

REGISTRATION IS OPEN! Register for the conference now using this link! Experience the convenience of our new conference app, enabling you to personalize your agenda like never before. Upon registration, simply download the app and begin crafting your tailored agenda right away. 

Already registered? Be on the lookout for an email detailing next steps to setting up the app. Should you need additional assistance, please reach out to Evelyn Argirokastritis: 

Is the registration fee keeping you from joining us this year? Please contact Shelley Bowen:

HOTEL RESERVATIONS: Barth Syndrome Foundation negotiated a special Group Rate starting at US $189/night, but the special rate will be available through July 4th or until the group block is sold-out, whichever comes first. Visit the hotel's reservation site.

It takes a village to power this conference - you can show your support by becoming a corporate sponsor or a community sponsor

Powered by Firespring