PFDD Meeting Barth Syndrome live streaming

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Welcome	Emily Milligan	00:00-5:00
Opening Remarks – FDA	Celia M. Witten, PhD, MD	6:05-14:00
Clinical Overview of Barth Syndrome	Colin Steward, PhD, FRCP, FRCPCH	15:00-42:00
Introduction to Barth Syndrome and One Family's Experience with BTHS	Kate McCurdy	42:05-1:07
Introduction and Overview of Meeting	James Valentine, JD, MHS	1:07-1:38
Panel 1	Symptoms and Daily Impacts
Peter V.	Affected Individual	1:38-1:43:43
Jasmine C.	Parent of Affected Individual	1:43:44-1:50:57
Kevin B.	Affected Individual	1:51:07-1:55:28
Jacob W.	Affected Individual	1:55:38-2:00:03
Nicole D.	Parent of Affected Individual	2:00:15-2:05:32
Audience & Remote Polling	James Valentine, JD, MHS	2:06:11-2:19:11
Moderated Audience Discussion	James Valentine, JD, MHS	2:19:13-2:59:48
Video of BTHS Individual		2:59:50-3:03:04
Welcome Back	James Valentine, JD, MHS	3:03:28 – 3:04:46
Introductory Remarks - FDA	Scott Winiecki, MD	3:04:48 – 3:13:03
Introduction to Panel 2	James Valentine, JD, MHS	3:13:08 – 3:16:39
Panel 2	Current and Future Approaches to Treatments
Nick D.	Affected Individual	3:16:40-3:23:12
Amanda M.	Parent of Affected Individual	3:23:20-3:29:23
Darryl B.	Affected Individual	3:29:28-3:35:38
John W.	Affected Individual	3:35:51-3:40:52
Kevin W.	Parent of Affected Individual	3:41:02-3:49:15
Audience & Remote Polling	James Valentine, JD, MHS	3:49:50-4:50:10
Moderated Audience Discussion	James Valentine, JD, MHS	4:13:35-4:50:10
Closing Comments	Shelley Bowen	4:50:20-4:49:15
Closing Remarks – FDA	Elizabeth Hart, MD	4:59:28-5:06:35

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