OUR FAMILIES ARE COUNTING ON YOU!
OUR MISSION
Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.
OUR VISION
A world in which Barth syndrome no longer causes suffering or loss of life.
WE NEED YOUR HELP
Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.
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State Charitable Solicitation Disclosures
Financial and other information about The Barth Syndrome Foundation's purpose, programs, and activities can be obtained by contacting The Barth Syndrome Foundation, 2005 Palmer Avenue #1033, Larchmont, New York 10538, (914) 303-6323 or for residents of the following states, as stated below. Florida: CH No. CH35474. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE, 1-800-HELP-FLA OR AT www.FloridaConsumerHelp.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. Maryland: For the cost of postage and copying, from the Secretary of State. Michigan: MICS No. 11501. The official registration and financial information of The Barth Syndrome Foundation may be obtained from the Mississippi Secretary of State's office by calling 1-888-236-6167. New Jersey: INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING (973)504-6215 AND ARE AVAILABLE ON THE INTERNET AT http://www.state.nj.us/lps/ca/charfrm.htm. New York: Upon request, a copy of The Barth Syndrome Foundation's 990 filed with the Attorney General is available from The Barth Syndrome Foundation or from the New York State Attorney General's Charities Bureau, Attn: FOIL Officer, 120 Broadway, New York, New York 10271; (212) 416-8401; https://www.charities nys.com/. North Carolina: Financial information about this organization and a copy of its license are available from the State Solicitation Licensing Branch at 1-888-830-4989 (within North Carolina) or (919) 814-5400 (outside of North Carolina). Pennsylvania: Further official information is available from the Pennsylvania Department of State by calling toll free, within Pennsylvania, 1-800-732-0999. Virginia: From the State Office of Consumer Affairs in the Department of Agriculture and Consumer Services, P.O. Box 1163, Richmond, VA 23218. Washington: From the Charities Program at 1-800-332-4483, or www.sos.wa.gov/charities. West Virginia: West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, WV 25305. CONTRIBUTIONS ARE DEDUCTIBLE FOR FEDERAL INCOME TAX PURPOSES IN ACCORDANCE WITH APPLICABLE LAW. REGISTRATION IN A STATE DOES NOT IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION OF THE BARTH SYNDROME FOUNDATION BY THE STATE.
