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Valerie (Shelley) Bowen

Valerie (Shelley) Bowen

Mrs. Bowen serves as the Director of Family Services & Advovacy of the Barth Syndrome Foundation as well as being a founding member of the organization.

When Mrs. Bowen received the diagnosis of Barth syndrome for her children the disorder was nameless and described as fatal. She has worked tirelessly since then to insure that not one more child will suffer or perish from the disorder.

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