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Let's Connect! Online Support Groups

Join an online discussion group or a yoga class. 

We recognize that this is an extraordinary time and that the COVID-19 situation is extremely stressful and frightening for most people in our community. Parents, caregivers, grandparents, teens, and adults with Barth syndrome - you may be literally and figuratively isolated but you are not alone!

In addition to providing COVID-19 specific guidance and precautions for individuals with Barth syndrome, we invite you to connect with others through an online support group. While the situation in our world seems to change daily, one thing is constant. We are a global Barth syndrome family and we are here for one another. 

Take care of yourself and your mental and emotional health by connecting with others, and take advantage of a free online yoga class. Details below. If you have any questions or need additional help, please email us

Stay in touch via Facebook, Twitter, and Instagram. We would love to get social with you during the coronavirus pandemic - but at a distance! 


DISCUSSION GROUP SCHEDULE

Click here to join or cut and paste this link: https://zoom.us/j/333055172

Meeting ID: 333 055 172

  • MONDAY (4PM EDT): Parents of children with Barth syndrome ages 0-4
    • Facilitator Chris Hope
  • TUESDAY (4PM EDT): Parents of children with Barth syndrome ages 5-10
    • Facilitator Michaela Damin
  • WEDNESDAY (4PM EDT): Parents & teens ages 11-17
    • Facilitator BJ Develle
  • THURSDAY (5PM EDT): Individuals with Barth syndrome ages 18 and up
    • Facilitators Iyar Mazar and Jonathan Stokes
  • FRIDAY (12PM EDT): BSF Round Table Discussion for EVERYONE!
    • Facilitator Emily Milligan

ALL LEVELS ONLINE YOGA

Cristy Balcells is a nurse, mother of a child with mitochondrial disease, prior ED of MitoAction and a yoga teacher. During the COVID-19 pandemic, Cristy is offering free online yoga All are welcome (no fee). 

  • Monday 9:30 am EDT 
  • Tuesday 12:00 pm EDT 
  • Wednesday 12:00 pm EDT 
  • Thursday 9:30 am EDT 

To join, simply click on the Zoom meeting link below. You'll need a computer or tablet/phone, a yoga mat, a cushion or blanket to sit on, and comfortable athletic clothing. Modifications are offered, making this an all-levels program intentionally designed to build strength and reduce stress.

Click here to join or cut and paste this link: https://zoom.us/j/710992357

Meeting ID: 710 992 357

For questions about this program, email Cristy directly.
 

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