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Let's Connect! Online Support Groups


 

Back to School Beyond the Mask


Join BJ Develle, LCSW and school counselor,  and Julie Floyd, head school counselor at Dacula High School, for a special discussion with our global Barth syndrome families about the choices facing parents this Fall. Back to school decisions right now are difficult and individualized. Please plan to attend the session appropriate for your child depending on their need for supervision.

Two sessions are offered at the same time.  

  • Julie Floyd will meet with parents of kids who do NOT require adult supervision, while
  • Bj will meet with parents of children requiring an adult at home to help

Dates

  • Thursday, August 6th, 2020 7:00 PM EDT
  • Saturday, August 8th, 2020 9:00 AM EDT

Meeting Details


  • Back to School Discussion with Julie Floyd (For children who can stay home without adult supervisionZoom Meeting
  • Back to School Discussion with BJ Develle (For children who need adult supervision) Zoom Meeting
  • Passcode for both meetings: B2School

 

JOIN THE BSF WEEKLY ROUNDTABLE, A VIRTUAL SOCIAL GATHERING OR A YOGA CLASS.

We recognize that this is an extraordinary time and that the COVID-19 situation is extremely stressful and frightening for most people in our community. Parents, caregivers, grandparents, teens, and adults with Barth syndrome - you may be literally and figuratively isolated but you are not alone!

In addition to providing COVID-19 specific guidance and precautions for individuals with Barth syndrome, we invite you to connect with others through an online support group. While the situation in our world seems to change daily, one thing is constant. We are a global Barth syndrome family and we are here for one another. 

Take care of yourself and your mental and emotional health by connecting with others, and take advantage of a free online yoga class. Details below. If you have any questions or need additional help, please email us. 

Stay in touch via Facebook, Twitter, and Instagram. We would love to get social with you during the coronavirus pandemic - but at a distance! 


DISCUSSION GROUP SCHEDULE

WEEKLY! 

  • WEDNESDAY (8PM EDT):  Quarantinis Virtual Happy Hour for adults in the Barth community to connect during COVID-19 isolation
    • Facilitator Nicole Derusha-Mackey
    • Click here to join, Meeting ID: 368 115 254, Password Barth
  • THURSDAY (Times vary, see below)
    • 9AM EDT: Individuals with Barth syndrome ages 18 and up  EVERY OTHER WEEK Facilitator Peter van Loo
    • 5PM EDT: Individuals with Barth syndrome ages 18 and up EVERY OTHER WEEK Facilitators Iyar Mazar and Jonathan Stokes
    • Click here to join, or use Zoom Meeting ID: 920 5742 5911 Link works for both Thursday meetings
    • REQUEST PASSWORD through the BSF Contact form
  • FRIDAY (12PM EDT): BSF Round Table Discussion for EVERYONE! 
  • SATURDAY (12PM EDT):  Virtual Show and Tell for children in the Barth community to show their talent or just tell us about their day.
    • Facilitator Nicole Derusha-Mackey
    • Click here to join, Meeting ID 873 6500 4744, Password Barth
  • SUNDAY (3PM EDT):  Sunday Funday a virtual half-hour to connect with other members of our community during isolation for COVID-19
    • Facilitator Nicole Derusha-Mackey
    • Click here to join, Meeting ID: 368 115 254, Password: Barth

Refer to the BSF Calendar for the full schedule at a glance.


ALL LEVELS ONLINE YOGA

Cristy Balcells is a nurse, mother of a child with mitochondrial disease, prior ED of MitoAction and a yoga teacher. During the COVID-19 pandemic, Cristy is offering online yoga All are welcome. Your first two weeks are free then $5/month thereafter. 

  • Monday 9:30 am EDT 
  • Tuesday 12:00 pm EDT 
  • Wednesday 12:00 pm EDT 
  • Thursday 9:30 am EDT 

To join, simply click on the Zoom meeting link below. You'll need a computer or tablet/phone, a yoga mat, a cushion or blanket to sit on, and comfortable athletic clothing. Modifications are offered, making this an all-levels program intentionally designed to build strength and reduce stress.

HTTP://bit.ly/yogalemonadeonline to join

For questions about this program, email Cristy directly.

 


Join by clicking the image to connect to Zoom; the password is Barth


A virtual show and tell! Click on the image to join, the password is Barth

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