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Living with Barth syndrome or being a caregiver for someone who has Barth syndrome is commonly overwhelming and can be very lonely. This is particularly true when you or a loved one are newly with Barth syndrome. This New Family Meetup is a great way to meet other new families who are probably going through the same challenges you are going through. You don't need to get dressed up, just come as you are. Passcode BSFMeeting