Skip to main content


Connor Woodward, age 9 and living with Barth syndrome, dropped the puck at a special New York Islanders hockey game to promote awareness and raise funds to help those who have Barth syndrome."We are just so proud of him, and humbled by the passion and dedication of volunteers and donors who showed up to support us. We really felt like VIPs for the day." (Stacey & Kevin Woodward, Connor's parents)

For the 4th consecutive year, the New York Islanders, a National Hockey League team, have helped to raise awareness and funds for Barth syndrome by promoting the cause. This year, the honor to drop the puck by a child with Barth syndrome was given to Connor Woodward. Watch Connor "drop the puck" here-->

Steve McCurdy, Chair Emeritus of BSF, has been the organizing force behind this event since its inception. "Connor had the biggest smile on his face as he walked out on the ice, high-fiving the star players. And then, when our PSA played on the jumbotron during the, it felt so inspiring to be there and to reflect on the work we have done over the last 20 years. What an incredible opportunity to reach so many people and to help them become aware of Barth syndrome, and we raised over $110,000 for our efforts from fans and donors. All in all, a pretty good day!" See Steve's interview and the PSA with NHL All-Star Mathew Barzal here -->

Powered by Firespring