Donate in tribute

Give a Gift in Honor of Someone Special

You can honor a special person while making a difference in the lives of those affected by Barth syndrome. A donation is a fitting tribute to someone special. Your support helps Barth Syndrome Foundation provide a wide range of programs to help ease the suffering of the boys and men with Barth syndrome.

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or donate by mail to Barth Syndrome Foundation, PO Box 419264, Boston, MA  02241-9264


  • Timothy J. Monahan, 30, of Brockton, passed away Tuesday, October 8, 2019, at the Brigham and Women’s Hospital in Boston after a lifelong courageous battle with Barth Syndrome.

    Born June 19, 1989, in Stoughton, he was the beloved son of Laurie E. (Anderson) Monahan and Thomas D. Monahan. Tim attended Sacred Heart School and graduated from Southeastern Regional Vocational Technical High School in 2008.

    In addition to his parents, Tim is survived by his devoted siblings, Jennifer R. Monahan, Thomas R. Monahan and his wife, Denise, Michael J. Monahan and his wife, Michelle, and Daniel J. Monahan and his wife, Danielle. Nephew of Linda and John Bartol and Chester and Julie Anderson, he is also survived by several aunts, uncles and cousins, as well as his nieces, Mckenna and Melanie, and his nephew, Kyle.

    Tim was loved by all who knew him, and those who met him would often remark on his resilience, kindness, grace, and memorable sense of humor.

    Tim enjoyed decorating for the holidays and watching movies with his family, floral arrangement and crafts, caring for his dogs, and gaming with his online community, where he developed some very dear friendships.

Donate Now!

or donate by mail to Barth Syndrome Foundation, PO Box 419264, Boston, MA  02241-9264


  • Will showed us all, every day, how to live a thoughtful, considerate life. He would often wake up from an operation and groggily thank the doctors and nurses who cared for him. He showed great interest and concern for the lives of others and never understood how or why it was that so many others considered him their hero and role model. His quiet persistence and determination inspired the creation of Team Will, a growing group of triathletes who compete at the highest levels in Ironman races across the country and around the world, raising funds and spreading awareness of Barth syndrome. He had a deeply inquiring mind, and, despite his physical inability to continue his own formal education, annually led a session in biochemical genetics to graduate students at Sarah Lawrence offering them the all-important patients’ perspective. Furthermore, he consistently bested his father at dinner table discussions on a wide variety of topics.

    The Barth Syndrome Foundation has been a critically important part of Will’s and his family’s lives since it was founded. It has created a global “family” for Will and the other boys and young men and families affected by Barth syndrome, and, crucially, it leads the world in promoting and funding research which will ultimately mean no one else need suffer as Will has.

    Established in 2015 by the McCurdy family in memory of their son, Will, the Will McCurdy Fund for the Advancement of Therapies for Barth Syndrome will be used by BSF exclusively for the development of therapies designed to prevent, alleviate, or eliminate the symptoms of Barth syndrome.

Donate Now!

or donate by mail to Barth Syndrome Foundation, PO Box 419264, Boston, MA  02241-9264

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