Skip to main content
Go to Previous Slide Go to Next Slide

The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

November 6, 2023
byEmily Madalinski

We are excited to announce that Lindsay T. Marjoram, PhD, will be joining BSF as a senior staff member on Nov 6, 2023!

November 2, 2023
byEmily Madalinski

  • Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.

  • Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.

  • Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.

  • Keep up-to-date on the Barth Syndrome Foundation's latest news.

Sign up for our newsletter

Let's stay in touch. Sign up for our email newsletter and we'll keep you up-to-date on all the work BSF is doing. We promise to never share your e-mail address with others.

First Name *
Last Name *

Powered by Firespring