With nearly 250 individuals already registered and eager to participate, we invite you to be a part of this enriching conference. Our program is thoughtfully designed to focus beyond symptoms of Barth syndrome, offering practical tools and insights for those living with or caring for a loved one with Barth syndrome. Reconnect with familiar faces and forge new connections as we come together to learn, grow, and support one another.

REGISTRATION IS OPEN! Register for the conference now through the link provided below. Experience the convenience of our new conference app, enabling you to personalize your agenda like never before. Upon registration, simply download the app and begin crafting your tailored agenda right away.